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Disability Organizations:
AAIDD - American Association on Intellectual and Developmental Disabilities
http://www.aamr.org/
ARC-USA: State Organizations
http://www.thearc.org/
Beach Center on Families and Disability
http://www.beachcenter.org/
Directory of State Developmental Disabilities Agencies
http://www.nasddds.org/MemberAgencies/index.shtml
President's Committee for People with
Intellectual Disabilities (PCPID)
http://www.acf.hhs.gov/programs/pcpid/
VOR
http://www.vor.net
Fragile X Research & Information:
Carolina Fragile X Project
http://www.fpg.unc.edu
Conquer Fragile X
http://www.fragilex.org/cfxf/
Fragile X Research Foundation of Canada
http://www.fragile-x.ca/default2.htm
FRAXA Research Foundation
http://www.fraxa.org
The M.I.N.D. Institute
http://mindinstitute.ucdmc.ucdavis.edu/
Paul Hagerman Lab at UC Davis
http://wizard1.ucdavis.edu
Stanford University School of Medicine Center for Interdisciplinary Brain Sciences Research (CIBSR) http://spnl.stanford.edu/researchproj/fragilex.htm
To upload a document, audio/video file, or link click here and choose "Upload a Resource on the left.
Genetic Information
GeneClinics: Fragile X Syndrome University of Washington
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=fragilex
Genetic Alliance
http://www.geneticalliance.org/
Genetic Counseling and You
http://www.nsgc.org/
Your Genes, Your Health
http://www.ygyh.org/fragx/whatisit.htm
Resources:
Access To Credible Genetics - How to determine if genetic information
can be trusted
http://www.trustortrash.org/
Alliance for Technology Access
http://www.ataccess.org/
Attainment Company
http://www.attainmentcompany.com/xcart/home.php
Centers for Disease Control and Prevention
National Center on Birth Defects and Developmental Disabilities (NCBDDD)
External Partners Group http://www.cdc.gov/ncbddd/partners/default.htm
The Developmental & Fragile X Resource
Centre
http://www.developmentalfx.org/
Disabilityinfo.gov
http://www.disabilityinfo.gov/digov-public/public/DisplayPage.do?parentFolderId=500
disABILITY Resources on the Internet
http://www.makoa.org/index.htm
Disability Scoop: Developmental Disability News
http://www.disabilityscoop.com
Easter Seals
http://www.easterseals.com/site/PageServer
EP Magazine - Exceptional Parent
http://www.eparent.com
Family Center on Technology and Disability (FCTD)
http://www.fctd.info/
Family Village
http://www.familyvillage.wisc.edu/
IEP Publishing
http://www.ieps.net/
Living with Fragile X
http://www.livingwithfragilex.com
National Association of Parents with Children in Special Education
http://www.napcse.org/
National Center on Birth Defects and Developmental Disabilities
http://www.cdc.gov/ncbddd/single_gene/fragilex.htm
National Dissemination Center for Children with Disabilities
http://www.nichcy.org/
National Foundation of Dentistry for the Handicapped
http://www.nfdh.org/
OSEP: Office of Special Education Programs - U.S.
http://www.ed.gov/about/offices/list/osers/osep/index.html
Parent Training & Information Centers
by State
http://www.angelfire.com/ny/Debsimms/pti.html
Sensory Resources Inc.
http://www.sensoryresources.com
Sibling Support Project
http://www.siblingsupport.org/
Social Security Administration
Benefits For People With Disabilities http://www.ssa.gov/disability/
Special Education Resources on the Internet (SERI)
http://seriweb.com/
Special Education Law & Advocacy -
Wrightslaw
http://www.wrightslaw.com
Special Needs Alliance: Special Needs – Special
Attorneys
http://www.specialneedsalliance.com/home.aspx
Special Olympics
http://www.specialolympics.org/Special+Olympics+Public+Website/default.htm
The State of the States in Developmental Disabilities
https://www.cu.edu/ColemanInstitute/stateofthestates/
Your Day Away: support for parents of children special needs
worldwide
http://www.yourdayaway.com/
STOMP-Specialized Training of Military Parents
http://www.stompproject.org/
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